Aspie Girls

I will be starting graduate school in about a week. I have recently had to deal with the disability services at the university that I will be attending. I don't require much in the way of accomodations, but it turns out that what I do require is causing a bit of a fuss. It has been recommended that I have a private office space because of my sensory issues and tendency to talk to myself while reading. I wouldn't have thought that this would be that huge of a deal at the graduate level, but it is turning out to be somewhat of a nightmare. It isn't that people don't want to accomodate me, it is getting them to understand why accomodations are in order. Naturally, I don't want to disclose more than I have to, but it turns out that I am having to disclose more than I really wanted to.

In theory, when one deals with disability services, a minimal amount of disclosure is required. Generally, a letter is sent out stating that disability services is in possesion of documentation to support the requested accomodations. In my case, this wasn't enough. The folks in charge of allocating space at the university as well as my department of study ended up requesting the specific reasons for the request. This is upsetting to me, to say the least. Graduate studies are serious business. I don't want them thinking that I am somehow less than capable. As anyone who has ever been to graduate school can attest, having the faculty doubt your ability can be damning, to say the least. When I saw the letter that was sent out to the building explaining the specific reasons why accomodation was needed, it read like I am some sort of basket case. The mental image generated by their description of my particular areas of disability leed one to wonder if I am even fit for a university setting in the first place.

I startle easily. I have significant issues with focused, sustained attention and am easily distracted by sounds and movements that would be considered reasonable to most typical individuals (i.e breathing sounds, chair shifting sounds, paper shuffling, etc.). Most sounds that would be typical of a shared office setting would result in my being unable to focus and study. I could wear headphones to eliminate sounds in my environment, but this would generate a good deal of anxiety for me. I tend to worry a lot about what others may be thinking about me since I am not so great at reading peoples social undertones. In addition to the distractability issues and the social anxiety, I also have a tendency to talk to myself while I am reading or assimilating large amounts of information. This could be distracting to the people around me, but it is necessary for me to take in and use the information that I am studying.Ugh..... Did anyone happen to notice that I had a 3.87 GPA in the last program that I attended? That I have lecture experience and was the head teaching assistant in my last program? Probably not. They are more likely left wondering if I faked my application!

In all of my past experiences with university course work, I have actually never had to contact disability services for accomodations because I have been very fortunate. A private office space was a simple request that more or less went without question. I didn't need to prove anything. In the past, I have just mentioned that I have significant "sensory issues" that are documented and I have subsequently been allocated space in a dark, dusty unused room in the basement. The accomodations haven't been glamorous, but they have been functional. In this current situation, I have been put in a position where I am being made to feel like others think that I somehow feel that I deserve unfounded special treatment. This couldn't be further from the truth. I have actually been sent an email explaining that standard procedure mandates that there be four graduate students to a single office and that my request will set a precedent. The entire situation has left me wondering, "How much disclosure is enough?" I can understand and appreciate that providing documentation to disability services is necessary in order to help one identify what accomodations are necessary and to also prove the medical basis for accomodation, but how much information should individuals outside of that office be given? At what point am I disclosing too much? The university has a whole department specializing in the special needs of students with legitimate and documented disabilities! Shouldn't the university as a whole trust the discretion of the department they enlisted to screen the validity of an individuals needs and the resulting accomodations?

Recently, me and my youngest daughter wereboth diagnosed with Asperger's Syndrome. The subject has quickly becomean area of "special interest" for me and I have been obsessively reading anything and everything related to the condition that I can find. The more I read the more obvious it is becoming that Asperger'sSyndrome is largely considered to be a "male-only" condition. Now, disgruntled by the lack of information available to women on the topic of Asperger's Syndrome (AS), I decided that I would start a blog for women and girls who are searching for more information.

The English psychiatrist Lorna Wing is often credited for therevival of Dr. Hans Asperger's previously untranslated 1944 German manuscript on "autistic psychopathy". In 1981 Wing published her own set of observations along side of those of Asperger in a scholarly article entitled Asperger's Syndrome:  A Clinical Account. There research was reportedly a direct result of her own daughter having been diagnosed with the condition she herself had termed "Asperger'sSyndrome'. I find it ironic that nearly 30 years later there is stillsurprisingly little information on women and girls with AS despite the fact that a women was on the forefront of the earliest AS research. It is quickly becoming clear that AS is not a "male only" affliction because the number of women and girls being diagnosed with the condition is on the rise. I expect that in the years to come we will begin to see more and more information related to the study of AS int he female population. I have decided to make it my mission to help spread that information as it becomes available.  In the mean time, I will make it a point to blog about my life with AS and the challenges that I face as a wife and mother.

Thank you for reading and I hope that the stories I share in this blog will prove to be helpful to someone out there struggling to understand what it means to be a female with Asperger's Syndrome.